ABN 26244055474                                          A  REGISTERED HEALTH CHARITY

About Nystagmus

Nystagmus is a complex eye condition. It can be present from birth (Congenital) or it can occur as a result of a head injury (Acquired). The eyes involuntary move rapidly from side to side sometimes up and down to try and focus and some people also move their heads to try and compensate. This eye movement means that people with nystagmus are partially sighted and have poor depth perception.

People with nystagmus are often ridiculed, bullied, abused and embarrassed all their lives because of eye and/or head movement, causing many to become shy and introverted, not discussing their condition with other members of society. As one of the minority disabled groups we are not recognised by either Australian Federal or State governments as people needing help. Which is why nystagmus is known as the SILENT DISABILITY.

Nystagmus is also affected by outside influences like bright sunshine, tiredness, medication, stress, so the severity of it can vary at different times of the day.

Most people with Nystagmus can never hold a driver’s licence, thus severely limiting their chances of finding work – especially if they live outside a capital city where public transport is not as good. It is almost essential to have a driver’s licence in Australia because of the vast distances.

Nystagmus affects 1 in 1000 people in Australia.

About Nystagmus Aware Australia

The Nystagmus Aware Australia group has been established with a view to assist, advise and support those who suffer from Nystagmus. We also welcome parents, carers, partners and anyone who is directly or indirectly affected by Nystagmus – teachers, friends, relatives, colleagues, employers, politicians, researchers; in fact anyone who needs help to become Nystagmus aware.We are an active organisation to help people with Nystagmus not just a website.

Our aims are:

  1. To bring Australia up to date with other countries in their awareness of Nystagmus.
  2. Getting Nystagmus recognised as a disability by the Australian Governments, federal and state – thus giving sufferers help with transport in getting to and from work or school.
  3. Raising awareness of Nystagmus within the general community.
  4. Making teachers and employers aware of the difficulties faced by people with Nystagmus on a daily basis.
  5. To support and help people with Nystagmus in their daily lives.
  6. To raise money for research into Nystagmus in Australia

PLEASE CHECK OUR NEW ‘NEWS’ PAGE FOR THE LATEST ON WHAT NYSTAGMUS AWARE ARE DOING. This page is open to both members and non-members.

Become a member

 We are the only official registered health charity and organisation in Australia for Nystagmus.

Becoming a member of Nystagmus Aware Australia enables you to access the community discussion forums, all the latest news and articles related to Nystagmus and numerous additional resources. Your fee helps to raise awareness and contributes to the maintenance and hosting of this website. Your questions about Nystagmus could very well be answered by our documents and guides (under ‘resources’) available to members. If not you can ask the question on our community forum. Or on our members only chat page on Facebook JOIN NOW and chat to others you are not alone united together we can improve our lives.


We welcome enquiries from potential sponsors as well as donations to assist in raising awareness at a National level. To show your support for our cause, we encourage you to become a member. If you have any questions please email us info@nystagmusawareaustralia.com

Any donations over $2.00 are tax deductible as we are a registered deductible gift recipient {DGR} does not apply to membership subscriptions.

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It is the aim of Nystagmus Aware Australia to raise funds to encourage research in Australia.  We have addressed this by  registering as a charity and hope to promote fund raising events based on awareness and we encourage members and supporters to do likewise.

Melbourne University is currently the only place in Australia with a Nystagmus unit and unfortunately they are using outdated equipment which does not give proper analysis of Nystagmus. It can’t be used on small children or babies, which badly needs to be addressed. We are desperately trying to raise $40,000.00 to buy a new machine, so the Nystagmus Unit can function properly. We need each and every one of you to dip your hands in your pockets and donate to this cause. No matter how small or big your donation is – it all helps.  YOUR HELP IS URGENTLY NEEDED.  Please click on the appropriate amount button below to donate through eway with either master or visa card.  Remember all donations are tax deductible as we are DGR registered.





Our grateful thanks to fluccs who host our site free of charge because we are a charity. Please support those who support us. 
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